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Care Considerations And Treatment Guidelines Ifopa International

Leo Migdal
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care considerations and treatment guidelines ifopa international

Received 2021 Aug 5; Accepted 2022 Feb 6; Collection date 2022. Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to... The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from... To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.

Fibrodysplasia ossificans progressiva (FOP) is an ultra-rare, disabling genetic disorder characterized by congenital malformations of the great toes and progressive heterotopic ossification of soft and connective tissues. Assiduous attention to the unmet needs of this patient community is crucial to prevent potential iatrogenic harm and optimize care for individuals with FOP. To gather international expert opinion and real-world experience on the key challenges for individuals with FOP and their families, highlight critical gaps in care, communication, and research, and provide recommendations for improvement. An international group of expert clinicians, patients and patient advocates, caregivers and representatives from the international FOP community participated in a virtual, half-day meeting on 22 March 2021 to discuss the key unmet needs... What can you do for your patients with FOP? What can you do for your patients with FOP?

FOP patients and their caregivers should be educated on the importance of preventing heterotopic ossification (HO), where possible. This includes avoidance of medical procedures that could lead to a (including surgery, biopsies, intramuscular injections and invasive dental procedures) and prophylactic measures against falls, respiratory decline and viral infections.1 Key recommendations from the International Clinical Council (ICC) guidelines1*

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Received 2021 Aug 5; Accepted 2022 Feb 6; Collection Date

Received 2021 Aug 5; Accepted 2022 Feb 6; Collection date 2022. Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to... The images or other third party material in this article are included in the article's Creative ...

Fibrodysplasia Ossificans Progressiva (FOP) Is An Ultra-rare, Disabling Genetic Disorder

Fibrodysplasia ossificans progressiva (FOP) is an ultra-rare, disabling genetic disorder characterized by congenital malformations of the great toes and progressive heterotopic ossification of soft and connective tissues. Assiduous attention to the unmet needs of this patient community is crucial to prevent potential iatrogenic harm and optimize care for individuals with FOP. To gather internation...

FOP Patients And Their Caregivers Should Be Educated On The

FOP patients and their caregivers should be educated on the importance of preventing heterotopic ossification (HO), where possible. This includes avoidance of medical procedures that could lead to a (including surgery, biopsies, intramuscular injections and invasive dental procedures) and prophylactic measures against falls, respiratory decline and viral infections.1 Key recommendations from the I...