International Fop Association North Kansas City Mo Cause Iq

Leo Migdal

-Dec 5, 2025, 2:24 PM

international fop association north kansas city mo cause iq

Want updates when International FOP Association has new information, or want to find more organizations like International FOP Association? © 2025 Nonprofit Metrics LLCTerms of Service and Privacy Policy 1520 Clay St, Ste H2, North Kansas City, MO 64116North Kansas City, Missouri, United States The International Fibrodysplasia Ossificans Progressiva Association (IFOPA) is a voluntary, non-profit organization that supports those afflicted by the rare genetic condition Fibrodysplasia Ossificans Progressiva and their families by instilling hope worldwide while searching for... Their mission is to eliminate FOP as a health concern through education, research, advocacy, and support. Fibrodysplasia ossificans progressiva (FOP) is a very rare inherited connective tissue disorder characterized by the abnormal development of bone in areas of the body where bone is not normally present (heterotopic ossification), such as...

The International Fibrodysplasia Ossificans Progressiva Association (IFOPA) is a US-based 501(c)(3) non-profit organization supporting medical research, education and communication for those afflicted by the rare genetic condition Fibrodysplasia Ossificans Progressiva (FOP). IFOPA's mission is to fund research to find a cure for FOP while supporting, connecting, and advocating for individuals with FOP and their families, and raising awareness worldwide. IFOPA is governed by a volunteer board of directors which may range in number from 9 to 15, at least one of whom must have FOP. The association's location is 1520 Clay St., Suite H2, North Kansas City, MO, 64116, part of the Kansas City, Missouri metropolitan area. IFOPA was founded in 1988 by Jeannie L. Peeper.

Diagnosed with FOP in 1962 at age four, Peeper graduated from college in 1985 with a bachelor of arts degree in social work. Michael Zasloff, then at the National Institutes of Health (NIH), was studying FOP and put Peeper in contact with all FOP patients known to the NIH, eighteen in total, to whom Peeper mailed a... Eleven responded. In early 1988, Peeper started a newsletter called FOP Connection in collaboration with Nancy Sando, one of the respondents. In June of that year, Peeper founded the IFOPA to facilitate fund raising for FOP research and generally create awareness of the disease. With an initial association membership of eleven, Peeper became the inaugural president and Sando was appointed vice president.

In 1989, Peeper collaborated with the University of Pennsylvania to support establishment of the FOP Collaborative Research Project, and in 1992, the Center for Research in FOP and Related Disorders, efforts spearheaded by Drs. Frederick Kaplan, Michael Zasloff, and Eileen Shore. Throughout the 1990s, IFOPA organized two international symposiums on FOP and several FOP family meetings. In the first decade of the 2000s, two more international symposiums were hosted by IFOPA, and other FOP scientific and family meetings were held in Argentina, Brazil, Canada, France, Germany, Italy, The Netherlands, Sweden,... In April 2006, the Center for Research in FOP discovered the FOP gene. By 2020, the organization had over 500 members from 57 countries and had partnered with FOP organizations and communities on all continents except Antarctica.

In 2010, IFOPA implemented the first annual Jeannie L Peeper Awards to recognize philanthropy, community involvement, international leadership and youth leadership in support of the FOP cause. Also in 2010, the Central Florida Chapter of the Association of Fund Raising Professionals named Peeper as winner of the 2010 Lifetime Achievement Award for her work in founding and establishing the IFOPA. A gathering of FOP families, supporters, researchers, and pharmaceutical industry representatives was held in Orlando in late 2013 on the 25th anniversary of the Association. IFOPA hosted FOP drug development forums in 2014 and 2016 in Boston, 2017 in Sardinia Italy, and 2019 in Orlando. The forums brought together FOP experts to discuss the latest research, solve drug development challenges and strengthen the global network of research collaborations. The 2019 Drug Development Forum attracted 154 attendees from 19 countries including researchers, clinicians, biotech and pharmaceutical company representatives, regulators, advocates and people living with FOP.[1]

International Fop Association is a CO - Charitable Organization registered with State of Colorado, Department of State (CDOS), Charities Program. The entity number is #20063011326. The business address is 1520 Clay St, Ste H2, North Kansas City, MO 64116, UNITED STATES. The authorized officer is Jamie Roach. Do you have more infomration about International Fop Association? Please fill in the following form.

This dataset includes 20 thousand charities, paid solicitors, professional fundraising consultants, and for-profit Public Benefit Corporations that register to solicit charitable contributions in Colorado, registered with Colorado Department of State (CDOS), Charities Program. Filings are required by the Colorado Charitable Solicitations Act. Each entity is registered with entity number, name, location, mailing address, registration date, officers, etc. Cause Description: To fund research to find a cure for fibrodysplasia ossificans progressiva (FOP) while supporting, connecting and advocating for individuals with FOP and their families, and raising awareness worldwide. FOP is an ultra-rare disease in which normal bone forms in muscles, tendons, ligaments, and other connective tissues, forming an extra skeleton that immobilizes the body. The IFOPA was founded in 1988 to end the social isolation imposed by this rare, debilitating disease.

To support International FOP Association - IFOPA with a free iGive account, click here! Fundraising for International FOP Association - IFOPA has never been easier. Up to 26% of each purchase is donated to them. iGive.com is the easy way to support International FOP Association - IFOPA. Your everyday purchases International FOP Association - IFOPA mean serious donations! Folks just like you have helped list over 35,000 causes and charities at iGive.com, including International FOP Association - IFOPA.

Working with others, in a spirit of generosity and mutual respect, we want to help build a world where all people can lead free and dignified lives. Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing

International Fop Association North Kansas City Mo Cause Iq

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