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Rare Disease Day 2025 Ifopa International Fop Association

Leo Migdal
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rare disease day 2025 ifopa international fop association

Session Spotlight: Resilient As Always—Advocating for FOP Through Story We are thrilled to welcome Dean Wang, author of Resilient As Always, to the main stage at the 2025 FOP Family Gathering on Saturday, November... Dean, a student at Harvard University, was inspired by his father, Dr. Haitao Wang of Mayo Clinic, to raise awareness of FOP through storytelling. His book, Resilient As Always, shares powerful insights about resilience and advocacy in the face of FOP. During this session, Dean will share what inspired him to write the book and the process behind its evolution. Don’t miss this chance to hear how one story can light the way for awareness, advocacy, and hope.

📌 Register now: ifopa.org/familygathering #2025FOPGathering #RareDisease #FOPCommunity 1520 Clay St, Ste H2, North Kansas City, MO 64116North Kansas City, Missouri, United States The International Fibrodysplasia Ossificans Progressiva Association (IFOPA) is a voluntary, non-profit organization that supports those afflicted by the rare genetic condition Fibrodysplasia Ossificans Progressiva and their families by instilling hope worldwide while searching for... Their mission is to eliminate FOP as a health concern through education, research, advocacy, and support. Fibrodysplasia ossificans progressiva (FOP) is a very rare inherited connective tissue disorder characterized by the abnormal development of bone in areas of the body where bone is not normally present (heterotopic ossification), such as...

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Session Spotlight: Resilient As Always—Advocating For FOP Through Story We

Session Spotlight: Resilient As Always—Advocating for FOP Through Story We are thrilled to welcome Dean Wang, author of Resilient As Always, to the main stage at the 2025 FOP Family Gathering on Saturday, November... Dean, a student at Harvard University, was inspired by his father, Dr. Haitao Wang of Mayo Clinic, to raise awareness of FOP through storytelling. His book, Resilient As Always, share...

📌 Register Now: Ifopa.org/familygathering #2025FOPGathering #RareDisease #FOPCommunity 1520 Clay St,

📌 Register now: ifopa.org/familygathering #2025FOPGathering #RareDisease #FOPCommunity 1520 Clay St, Ste H2, North Kansas City, MO 64116North Kansas City, Missouri, United States The International Fibrodysplasia Ossificans Progressiva Association (IFOPA) is a voluntary, non-profit organization that supports those afflicted by the rare genetic condition Fibrodysplasia Ossificans Progressiva and th...